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DATELINE: Suffolk VA, April 21, 2012 7:30 AM. Several hundred cyclists have gathered at the starting point to this Tour de Cure event to support the American Diabetes Association. Each rider has raised at least $175 for the privilege of riding in this event. The Norfolk Southern Company amassed a team of over 125 riders of all ability levels to support this worthy cause. My Team Type 2 teammate John Anderson and I are in the middle of this crowd waiting for the starting whistle to blow. Speeches are made, the Star Spangle Banner is sung and finally were told to start our ride.

There are several different planned routes ranging in distance from a 10 mile long route all the way up through a 100 mile “Century” route. I’ve chosen to ride the 65 mile (“Metric Century” or 100k) route today so I could spend some time smoozing with other riders and spreading the word that anyone with diabetes can do anything he/she wants. We start out slowly en-mass and after a short period of time I find my comfortable cadence.  I’m talking to a lot of riders some of whom are living with diabetes like I am and some of whom are supporting family members who are living with diabetes. These are interesting conversations about how we take care of ourselves and how we take care of our loved ones.

About 5 miles into the event I team up with a group of six other guys from the Norfolk Southern team. We form a paceline and ride at an average speed of about 18 1/2 mph until we reached the first rest stop at mile 27. It’s interesting how a somewhat experienced cyclist like myself can fall into a paceline with other somewhat experienced cyclists and we become one. You can hear the hum of the bicycles as we roll along the Virginia countryside. It’s an amazing experience.

At the rest stop I refill my water bottles, recycle some previously ingested liquids and eat a banana. I’m talking to other riders and some volunteers and a notice that my new-found friends have taken off with their group. No problem — there are others so I get back on the road. I’m riding alone for a few minutes when another group of eight riders pass me so I accelerate to join their group. This is a slightly faster group and the average speed for the next 20 miles or so was about 19 1/2 mph.

As I mentioned earlier there are several planned routes at the Tour de Cure. Each route is marked with different colored arrows, for example, the 100 mile route is marked with orange arrows and the 65 mile route that I was doing is marked with yellow arrows. The two follow the same route for about 45 miles then the 100 mile route turns right and the 65 mile route turns left. Well there I was with probably a dozen or so other riders and everybody was turning right and I turned right with them. About 1/2 mile down the road I noticed there was only an orange arrow marking the route. “Oh crap!” So I did a quick U-turn, went back to the turn off and found the  yellow arrows.  I really had to laugh about that to myself. Unfortunately I was the only one around  who was riding the 65 mile route so there I was rolling along this beautiful Virginia country — just me and my trusty steed “Pegasus”. It was actually quite serene and I felt wonderful as my legs were turning the pedals at a comfortable 85 RPM cadence. Since this was pretty much an out and back route I was soon passing people coming from the start line and having some quick conversations with them: “Enjoy the ride!, Keep up the good work!, It’s a gorgeous day just have fun!, Ride safe!”  Lot’s of thumbs up signals too.

Me with rest stop volunteers

Eventually I came back to the  same rest stop and talked to a lot more riders all of whom were just 27 miles into the their 65 mile ride. I talked with some of the volunteers and get to know them a little bit — they even agreed to a photo with my sweaty self — great people!!

After a while I got back on “Pegasus”  eventually merging and talking with a number of riders who were doing the 10 or 30 mile routes. It’s kind of funny thinking back to when 30 miles or even 10 miles was a fairly long ride for me. I remember the first 30 mile ride I did. I thought I was doing okay but near the end when I came to a stop light and put my leg down it collapsed out from underneath me and I fell to the ground because my muscles were too exhausted to hold me up. These people were struggling with their 10 or 30 mile rides much more than I was struggling with my 65 mile ride or even would have struggled with a 100 mile ride. I admire them. I admire their tenacity. I admire their will to control their diabetes.

Reaching the finish line is always a celebration. People are cheering, ringing cowbells and blowing horns and there is music playing — this really a great feeling!

My next Tour de Cure Ride is in two weeks in Sacramento California. I’m planning to do the 100 mile “Century” ride with 5,000 feet of climbing. I’ll be with my teammate Becky Furuta and I’m really looking forward to having a blast!!!  Come back and read about it.

Please CLICK HERE  to read an interview with Team Type 1 Sanofi CEO Phil Sutherland about not being invited to the Tour of California and actually being asked for a $100,000 entry fee.  Phil refused to pay the entry fee because it would have taken away from our budget to send diabetic kids to camps.  YEAH PHIL!!

Personally I’m appalled by the actions of the Tour of California organizers.  They said they want to promote American cycling but refused entry to four American teams.

RIDING WITH FRIENDS

Riding with a group is a whole lot more fun that riding alone, and it’s a lot safer.  Riding with a group of friends is the best of all.  Friends take care of you and you take care of them if one of you has a problem.  Friends riding together adhere to a “no drop ” policy so no one gets left behind to ride alone.  I’ve been the beneficiary of a “no drop” policy ride many times and I’ve been left behind by groups that have a keep up or die policy.

Today I had a really nice 35 mile ride with my friends Mark, Joe and Doug.  Dan started with us but broke a chain 15 minutes into the ride and had to call his wife to pick him up.  The rest of us made sure Dan was okay before we continued our ride.  I wasn’t the strongest rider in the group but I wasn’t the weakest either.  I had no problem keeping up with Mark and Joe who were the stronger riders but Doug is relatively inexperienced and hasn’t had the time in the saddle that the rest of us have had.  Doug was hesitant about riding with us but we assured him that we wouldn’t drop him … and we didn’t.  At several times during the ride, especially during a climb, Doug fell behind.  No problem, we just soft pedaled until everyone was together again.  It’s a good feeling.

Towards the end of the ride Doug was really hurting.  I gave him some food and electrolytes to fuel himself and Joe positioned himself so Doug could draft him.  We slowed the pace to assure that Doug would not get dropped.  Last year Joe did the same for me on a ride.  It’s good to have friends.

RIDE SAFE Y’ALL

In REFLECTIONS PART I, I chronicled my journey to becoming a cycling addict.  In this post I chronicle my journey to take control of my diabetes.  To use a cycling metaphor, the journey is certainly more of a century than a criterium and is probably more like a multi-stage race at that.  One day I’m wearing the yellow jersey but the next I might crash and find myself playing catch the field.

It was about four years ago, sometime in 2008 when a nurse at my doctor’s office proclaimed me to be a diabetic.  I should not have been all that surprised.  My parents and siblings had diabetes so it ran in my family.  Many years before, I’m guessing around 35-40 years before, a doctor had me take a glucose tolerance test and told me that “someday” I’ll have a problem with my blood sugar.  But no doctor had used the “D” or “Pre-D” word with me until four years ago.  The nurse did an in-office A1C test which showed a reading of 7.4%.  Now I didn’t get up to an A1C of 7.4 overnight so I’m a more that a little perplexed and angry that all those doctors didn’t warn me for all those years.

Maybe the A1C rise wasn’t as gradual as all that.  When I was younger, probably through my forties, I was very active.  I ran a lot and worked myself up to a 1/2 marathon;  I played squash and tennis; and I rode my bicycle.  Maybe my active lifestyle helped keep my blood sugar under control.  Then somewhere along the way I stopped running, playing squash and tennis and riding my bicycle.  Around that time I suffered the shock of being laid off from I job I loved and was doing great in.  The company merged with another and I was one of the innocent victims of overpopulation.  When I was diagnosed with diabetes I was going through the same thing and taking control just wasn’t as urgent as finding a way to put food on the table and pay the mortgage.  Again, I found a way but suffered a lot of stress.

After being diagnosed and moving to Richmond I continued to swim in De-Nile, which is not a river in Egypt.  I thought I could do it alone.  Ride my bike, tweak my diet and conquer the big D all by myself.    Over a year or so I lost 20 or so pounds, down to about 185 from 205 and my A1C went down to 6.8.  But that was it and it was not enough.  I made an appointment with an endocrinologist to get advice about medication.  He downloaded my bgl monitor and saw my readings.  Then he sat down with me and explained all the options about taking insulin and the different oral meds and he suggested a plan for me.  I followed the plan for a year and my A1C went down to about 6.2.  Tweaking my nutrition and riding my bike helped me lose another 15 pounds or so now down to about 170.

Something was bothering me.  Everything I read about sports nutrition says that I need carbs to feed my muscles.  Everything I read about diabetes nutrition says I need to limit carbs to control my blood sugar.  The big question I couldn’t find a usable answer to was “How do I balance my need for carbs to cycle with my need to limit my carbs for blood sugar control?”  In my search I came across the Facebook page for Team Type 2 Sanofi.  I found the friendly face of  Saul Zuckman, a 70 year old Team member who lives not far from me.  I messaged Saul asking him for some advice.

The advice I got from him, and eventually all of my Team Type 2 Sanofi teammates, was the most truthful, useful advice I’ve gotten from anyone about controlling diabetes:  We’re all different and we all react to medication, food and exercise according to our own body chemistry.  What’s good for one may not be good for another.  Experiment and get to know your body.

I’m starting my third year with Team Type 2 Sanofi and in the past two years I’ve learned a lot about my body, how to eat and how to exercise.  The Eureka solution finally hit me this year.  What I need to do to control my diabetes is what EVERYONE SHOULD BE DOING to stay healthy:  maintain nutritional habits that balance the three macro-nutrients, carbs, protein and fats, and maintain an active lifestyle — keep moving.  And of course take your medications as prescribed by your doctor.  My A1C is now 5.9 and my weight is down to 150.  I’m close to goal … so close.

REFLECTIONS PART III will about how I structure my nutrition for everyday living.  Come back soon.

AUTHOR’S NOTE: I will not talk about medications in these blog posts.  The medication regimen that works for me may be deadly for you.  The only useful advice I can give about medication is to learn all you can and then talk to your doctor.  Make him/her sit with you and explain all the options with all the pros and cons of each.  If you can’t get him/her to do that, find another doctor.

HELP STOP DIABETES.  On April 21 I will ride a century at the Hampton Roads Tour de Cure to support the American Diabetes Association.  Please make a generous contribution by clicking here.  Thank you!!

STOP DIABETES NOW!!!

It’s time to STOP DIABETES and 27 million Americans are counting on your help. This year again I’m cycling in the Tour de Cure in Hampton Roads, VA to STOP DIABETES because it is a leading cause blindness, stroke and heart attack. If ever there was a time to open your hearts and your checkbook, NOW is the time. But you don’t have to spend money on a stamp, just click this link and become a hero who helps STOP DIABETES

It’s snowing.  Yesterday it was 60 degrees and sunny.  Today it’s snowing.  Go figure.  Maybe it’s the weather and that I can’t think of anything else to do other than than buy something on line that I really don’t need.  So this blog post is part of my austerity program.  Or maybe it’s just something to do to keep me sane.  Anyhow, I feel reflective.  Let’s see where this takes me.

It was about four years ago when the nurse at my doctor’s office proclaimed me to be a Type 2 Diabetic.  She took a red hot iron out of the fire and branded the big “D” on my forehead for me to see every time I looked in the mirror.  I had more immediate problems at the time.  My job had evaporated out from underneath me and I was consumed with finding a new one.  Worrying about a chronic disease that could make me go blind, cause a stroke or kidney failure seemed to be less important than finding a new way to put food on the table and pay the mortgage.  At least it was a less urgent problem.

I got lucky and found a new position in a few months but it meant that I’d have to move my family to Richmond, VA.  As it turned out that was a pretty good move for the family, but that’s another blog post.  A few of the guys in my department are avid cyclists and they encouraged me get a bike.  In a younger day I rode a bike a lot with my wife and really enjoyed it so I decided to get a bike and maybe use it to commute into work and get some exercise on the weekend.  I needed to lose a few pounds … well actually about 60 of them and I knew losing the fat would help with controlling my blood sugar levels.  My friends, however, were not just into riding their bikes.  They were “cyclists” who rode for a purpose and then complained about how hard the ride was and then planned a harder one for next week.  They talked about their crashes and the resultant broken body parts and road rashes as their red badges of courage.

I panicked and went to my new doctor to see if I could be inoculated against this disease.  At least he might have a pill I could take to get healthy.  The first indication that this was not going to happen was the autographed photo of Lance Armstrong hanging in his waiting room.  I explained my fears to him.  He thought pensively for a moment and said to me in his best doctor’s voice: “Ed, resistance is futile.  And you need to lose 60 pounds.”  Oh crap.

I succumbed to the bug a few months later in October when I saw a pamphlet for the Leukemia and Lymphoma Society’s Team In Training.  The challenge was to raise about $2,500 for LLS and do a century ride (100 miles) the next June.  I told my wife I decided to do it.  She told me to increase my life insurance policy.  I got through the training and the century thanks to coach Andy Welch (Andy is now the manager at Endorphin Fitness in Richmond) and raised the money thanks to a lot of good people.  I finished the century 9 hours, 2 leg cramps and 1 puking session after I started and I felt like I just won the Tour de France.  I was irrevocably hooked on cycling.

Stayed tuned for REFLECTIONS PART II — Taking Control.

Flying With Diabetes

The following is from the TSA website.

I suggest that you print from the website and carry it with you.  Many of my friends have been harassed by ignorant TSA agents.

Diabetes

Notify the Security Officer that you have diabetes and are carrying your supplies with you. The following diabetes-related supplies and equipment are allowed through the checkpoint once they have been screened:

  • Insulin and insulin loaded dispensing products (vials or box of individual vials, jet injectors, biojectors, epipens, infusers, and preloaded syringes;
  • Unlimited number of unused syringes when accompanied by insulin or other injectable medication;
  • lancets, blood glucose meters, blood glucose meter test strips, alcohol swabs, meter-testing solutions;
  • Insulin pump and insulin pump supplies (cleaning agents, batteries, plastic tubing, infusion kit, catheter, and needle); Insulin pumps and supplies must be accompanied by insulin.
  • Glucagon emergency kit;
  • Urine ketone test strips;
  • Unlimited number of used syringes when transported in Sharps disposal container or other similar hard-surface container.
  • Sharps disposal containers or similar hard-surface disposal container for storing used syringes and test strips.

Insulin in any form or dispenser must be clearly identified.

If you are concerned or uncomfortable about going through the walk-through metal detector with your insulin pump, notify the Security Officer that you are wearing an insulin pump and would like a full-body pat-down and a visual inspection of your pump instead.

Advise the Security Officer that the insulin pump cannot be removed because it is inserted with a catheter (needle) under the skin.

Advise the Security Officer if you are experiencing low blood sugar and are in need of medical assistance.

You have the option of requesting a visual inspection of your insulin and diabetes associated supplies. See the Medication section below for details.

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